GLA and The Mighty asked the Lyme community for some ways to be a good friend to someone with Lyme disease. Here’s what they said:

1. “Call, text or message regularly just to say ‘checking in.’ And ask if it’s OK to come by with coffee/tea/etc. and just sit with me, even if it’s just to watch TV. It can be lonely.” — Jennifer Nunn Box

2. ”Don’t ask all the time how are you feeling? Just offer to spend time and be OK doing anything or nothing. Don’t make them feel like they need to be full of energy and upbeat all the time. Try to learn about the disease so you can understand a little of what they are going through.” — Karen Nunes

3. ”Don’t suggest a symptom is something other than what it is. Be a good listener. Don’t rewrite the script.” — Sarah Red

4. “Believe me. If I look OK on the outside, I’m not on the inside.” — Jeannette Hefer

5. “Talk to your friend. Text them, FaceTime them, keep them in your life. Invite them over, ask to come over, make plans to go out but don’t be upset if they can’t follow through that day. Do everything you can to make sure your friend isn’t forgotten just because they may not be doing what you’re doing and are trying to get healthy.” — Cassidy Schod

6. “Just ask how we are doing, and don’t expect us to lie and say we are improving. Understand that just because we look good, we are still in immense pain and discomfort every day. Understand that it may take months or years to heal.” — Stephanie Tartaglia

7. “Don’t act like I’m faking it.” — Anonymous

8. “Call, check in, stop by with a bottle of wine. Understand that I can’t get out evenings to meet up like I used to. Bring a movie and hang out with me. Understand that I am lonely most of the time because my friends are all out enjoying life.” — Deborah J Winters

9. “Be flexible, and pray! I have a friend who says, let’s pick a few different days we could get together and you can let me know that morning if you are feeling well enough to have company. It is so nice to have her know that I have a hard time making and keeping plans because I feel terrible that day. It helps me feel less guilty, less isolated, and understood.” — Lisa Paganelli King

Next Page

Leave a Reply

Your email address will not be published. Required fields are marked *